Our PARTNERS
KD-UK has developed strong links with the following organisations, and they are all a source of useful, current, and helpful information into Kennedy Disease.
MND Association - MNDA
The MND Association has a remit to support and help people living with Kennedy Disease. This extends to people living with the disease and their carters.
The Association has well established regional support groups and offers grants for people living with the illness. They also have a wheelchair service.
Please visit the MNDA website for more information. https://www.mndassociation.org
Kennedy Disease Raising Awareness – KDRA
KDRA is a private Facebook group that focuses entirely on people living with Kennedy Disease.
It is an excellent, and very well established, forum for engaging with other sufferers and for sharing experiences as to how to manage the illness. It rightly has a very strong following.
Please visit the KDRA Facebook page for more information. https://www.facebook.com/kennedysdiseaseuk?locale=en_GB
Kennedy Disease Association – KDA
The KDA is an American charity that has played a pivotal role in the fight to find a cure for Kennedy Disease and KD-UK has developed very strong links with them.
In addition to supporting people living with KD in North America they have raised large sums of money to support Kennedy Disease research programmes throughout the world.
There is an excellent patients Facebook Group in the United States that welcomes UK participants. It aims to promote active dialogue between people living with disease. Click here to request to join the group.
Highly respected by both patient groups and the research community there is much useful information on their website. https://kennedysdisease.org
International Associations
Please click on the logos to visit.
