We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
Find out more
Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
Find out more
Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreThe challenges of living with Kennedy’s Disease
Latest news
Following the highly successful London International KD conference, the presentations from the conference will be posted on this website shortly.
We have commissioned and printed a Kennedy Disease Christmas Card this year. A friend of KD very kindly painted a winter scene of Queen Square Gardens and the National Hospital…
TGA has partnered with the charity Kennedy’s Disease UK so people with the condition can more easily benefit from its mobility scooters, wheelchairs and powerchairs. TGA already works with several…
UCL testimonial
Our supporters
