We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreThe challenges of living with Kennedy’s Disease
Latest news
A group of very intrepid cyclists are cycling across the alps this July in aid of KD-UK. Many thousands of feet going up and down mountains! Please click the button…
We are very pleased to announce that Samantha has joined the team at KD-UK as our charity administrator. Sam can be contacted at sam@kd-uk.com.
Recent research into the frequency of the frequency of the pathogenic AR CAG repeat expansion in the general population would indicate that Kennedy Disease is at least 4 times more…
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