Kennedy's Disease UK


2019 Prudential Ride London 100


News & Events


Who we are.

We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.

What is Kennedy’s Disease

Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.

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Kennedy’s Disease Clinic

Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.

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Fundraising for KD-UK

Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.

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Latest news.

Weymouth Hockey Club Raise Money for KD-UK

| Events, Fundraising, News | No Comments
The team at KD-UK said a BIG THANK YOU to Weymouth Hockey Club last weekend for supporting KD-UK. Last Saturday it was the annual Battle of the Ridgeway at Weymouth…

We Need Your Views – UCL Survey

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We have been asked by the fantastic research team at University College London (UCL), home to the Kennedys Disease Clinic, if we could help them to get as many people…

Run the London Vitality Big-Half for KDUK

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The Vitality Big-Half is London's half marathon and welcomes participants of all ages, abilities and levels of experience. More than a half marathon, The Vitality Big Half will bring together…

UCL testimonial.

I can’t thank Kennedy’s Disease UK enough. There is currently no cure or treatment for this rare disease, and patients are struggling without the care and support they need. KD-UK’s tireless work to raise funds for UCL’s research into our understanding of this disease and the development of potential treatments, and their efforts to raise awareness of the disease and help others to access critical information, is invaluable. With KD-UK’s help, UCL research is making important progress and we are incredibly grateful for their support.

Professor Linda Greensmith, Research Lead at UCL

Our supporters.