Samantha Jayne
Swimming & Kennedys Disease
To inform this next phase of the project, we’re inviting people with NMDs to share their experiences of swimming specifically in pools or hydrotherapy…
Kennedy’s Disease can Impact your hearing
A recent study in Italy has found hearing impairment in Kennedy’s Disease patients….
Passing of our Trustee, Dr Michael Hope
Michael was diagnosed with Kennedy’s Disease in 2023, after more than eight years of navigating a difficult and often frustrating path to a confirmed…
Join us for an exclusive Zoom interview featuring Dr. Carlo Rinaldi
Dr. Rinaldi brings over a decade of groundbreaking research into SBMA (Kennedy’s Disease), from his early work at the NIH to leading his own…
We Have Two Incredible Runners in the London Marathon!
We’re thrilled to announce that Charlotte Beare and Ian Scarrott will be running the 2026 TCS London Marathon in support of Kennedy’s Disease UK!…
ANJII Drug trial shows POSITIVE RESULTS
ANJII Drug trial shows positive results, although it is still early days please do click the link to read more!…