Samantha Jayne
Fundraising Opportunities
Help KD-UK to raise much needed funds so that the charity can continue to provide funding for the specialist teams that support KD patients…
NIDO-361 Update
KD-UK has been informed that Initial results from the Phase 2 trial of the experimental drug NIDO-361 have not shown benefits….
FDA Grants Fast Track Designation for AJ201
The U.S. Food and Drug Administration (FDA) has granted Fast Track Designation to AJ201…
AnnJi Showcases Promising Results for AJ201 in Kennedy’s Disease Clinical Trial
Exciting news for the Kennedy’s Disease community! At the 2025 World Muscle Society International Congress in Vienna…
Luke’s Story
I was diagnosed with Kennedy’s Disease when I was 27. I’d just bought my first house and my parents were helping me decorate. My…
Canadian Protocol Release
Two senior Canadian researchers, Kerri Schellenberg and Gerald Pfeffer, were principal authors on the “Best practice recommendations for the clinical care of spinal bulbar…
Extended Funding
Louie has provided an excellent physio service to KD patients over the past 2 years…
Hastings Half Marathon Fundraising
Many thanks to Dom Palmer-Tomkinson for running the Hastings Half Marathon for KD-UK….
Interview with Terry Thompson, the President of the KDA
KD-UK recently interviewed Terry Thompson, the President of the KDA….