Samantha Jayne
International Newsletter for Kennedy’s Disease
We are delighted to share the third edition of our International Newsletter for Kennedy’s Disease….
Take on The Big Half This September – Run for KDUK
This September, the iconic The Big Half returns to the streets of London and this is your chance to be part of something extraordinary…
Huge congratulations to Ian Scarrott on completing the London Marathon! 🏃♂️
What an incredible achievement – not only conquering 26.2 miles, but also raising an amazing £2,500+ for us here at KDUK….
Colin and Georgina’s interviews
Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer….
Bath Half Marathon 2026: A Fantastic Effort for Kennedy’s Disease UK
A huge congratulations to Helen Kirkland, Aaron Sedman and Dan Ogden, who took on the Bath Half Marathon and completed the course while raising…
International KD Conference Orlando
The UK contingent of Professor Carlo Rinaldi, KD-UK Trustee Kim Slowe, Clinical Research Nurse Luca Zampredi…..
Fundraiser of the Year
The 2025 KD-UK Fundraiser of the Year Award has been given to Dom Palmer-Tomkinson….
Fundraising Opportunities
Help KD-UK to raise much needed funds so that the charity can continue to provide funding for the specialist teams that support KD patients…
NIDO-361 Update
KD-UK has been informed that Initial results from the Phase 2 trial of the experimental drug NIDO-361 have not shown benefits….