NEWS & EVENTS
This is where you will find out all the news about our charity. From amazing events to important research developments, the stories can all be found on this page.
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Exciting news for the Kennedy’s Disease community! At the 2025 World Muscle Society International Congress in Vienna
I was diagnosed with Kennedy’s Disease when I was 27. I’d just bought my first house and my parents were helping me decorate. My mum
Two senior Canadian researchers, Kerri Schellenberg and Gerald Pfeffer, were principal authors on the "Best practice recommendations for the clinical care of spinal bulbar muscular
Many thanks to Dom Palmer-Tomkinson for running the Hastings Half Marathon for KD-UK.
KD-UK recently interviewed Terry Thompson, the President of the KDA.
To inform this next phase of the project, we’re inviting people with NMDs to share their experiences of swimming specifically in pools or hydrotherapy settings.