Kennedy's Disease UK

NEWS & EVENTS

This is where you will find out all the news about our charity. From amazing events to important research developments, the stories can all be found on this page.

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Two senior Canadian researchers, Kerri Schellenberg and Gerald Pfeffer, were principal authors on the "Best practice recommendations for the clinical care of spinal bulbar muscular
Many thanks to Dom Palmer-Tomkinson for running the Hastings Half Marathon for KD-UK.
KD-UK recently interviewed Terry Thompson, the President of the KDA.
To inform this next phase of the project, we’re inviting people with NMDs to share their experiences of swimming specifically in pools or hydrotherapy settings.
A recent study in Italy has found hearing impairment in Kennedy’s Disease patients.
Dr. Rinaldi brings over a decade of groundbreaking research into SBMA (Kennedy’s Disease), from his early work at the NIH to leading his own lab
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Canadian Protocol Release

🏃‍♀️ Run for KD-UK at the Bath Half Marathon 2026!

Extended Funding

Hastings Half Marathon Fundraising

Interview with Terry Thompson, the President of the KDA

Swimming & Kennedys Disease

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