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The 2026
Conference

This section of the website will host interesting Kennedy’s Disease related links to presentations. Click on the links below to read more.

2024 KDA Confere4nce Orlando, FL. Susanne Waite keynote address.

2024 KDA Conference, Orlando, FL. Jameson’s Tips and Tricks

Ed Meyertholen’s discussion of the “Ten Things I’ve Learned in my 25 Years with KD”

Ed Meyertholen’s “A brief introduction to the biology of Kennedy’s Disease”

Dr. Montie discusses her research on Kennedy’s Disease at PCOM, Jan, 2016

Dr. Grunseich discusses Kennedy’s Disease clinical trials at the NIH, Bethesda, MD

2020 KDA Virtual Conference – Luca Zampedri presented results of a KD patient survey “Priorities in Managing KD Symptoms”

2020 KDA Virtual Conference – PT Joe Shrader from the NIH presented exercise recommendations for people with KD.

Dr. Fischbeck summarizes Kennedy’s Disease and possible treatments during an RDR conference in May, 2015

Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans ( Part 1)

Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans ( Part 2 )

Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans ( Part 1 )

Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans ( Part 2 )

Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans ( Part 3 )

Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference. ( Part 1 )

Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference. ( Part 2 )

Dr. Pennuto explains IGF-1/AKT Signaling in SBMA 2012 KDA Conference in New Orleans.

Re-Visiting KD Free Children – by Cliff Johnston 2012 KDA Conference in New Orleans

Dr. Poletti explains Small Heat Shock Proteins in SBMA 2012 KDA Conference in New Orleans

10 Years After – Dr. Meyertholen talks about the KDA and KD Research 2010 KDA Conference in San Diego, CA

Kennedy’s Disease-Free Children through IVF 2010 KDA Conference in San Diego, CA

Rare Disease Awareness and Kennedy’s Disease

KD and the Waites

Treatment Diary of Mr. Mattheis

A new handle on Kennedy’s Disease IRB Barcelona 2010 Annual Report

The UK’s First Kennedy’s Disease Clinic – 20116

Hand tremor, tongue and perioral fasciculation in a patient with Kennedy disease

Biologist Neville Sanjana explains one concept in 5 levels of Difficulty – CRISPR

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