We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreThe challenges of living with Kennedy’s Disease
Latest news
The Patient Day on 10 July 2022 in London is now open for registration. This is a free event for sufferers and carers. It is an excellent opportunity to engage…
The 2022 Great Road Trip in our Citroen 2CV is in track. The car is travelling across the USA in April/May and starts its European trip from Lands End to…
KD Patient Day in London A KD patient day and lunch is being organised at the Army & Navy Club in London on Sunday 10 July 2022. The event will…
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