We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
Find out more
Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
Find out more
Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreLatest news.
Please see below some general advice from Dr Fratta dn Dr Rinaldi at UCL with regard to Kennedys Disease and the COVID 19 virus. 23 February 2020 This is…
The team at KD-UK said a BIG THANK YOU to Weymouth Hockey Club last weekend for supporting KD-UK. Last Saturday it was the annual Battle of the Ridgeway at Weymouth…
We have been asked by the fantastic research team at University College London (UCL), home to the Kennedys Disease Clinic, if we could help them to get as many people…
UCL testimonial.
