We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreThe challenges of living with Kennedy’s Disease
Latest news
A very successful Kennedy's Disease patient day was held in London in July. The presentations are now available to download. Please click on the link below to be able to…
The Great Road Trip finished in Rome at the end of July and by then the bright red 2CV had travelled over 9,000 miles! The trip was a huge success.…
The Great Road Trip Celebration Dinner will be taking place at 7pm on July 8 at The Duchess of Cornwall Inn, Poundbury. The event costs £50 per person and guests…
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