We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
Find out more
Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
Find out more
Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreLatest news.
We have been asked by the fantastic research team at University College London (UCL), home to the Kennedys Disease Clinic, if we could help them to get as many people…
The Vitality Big-Half is London's half marathon and welcomes participants of all ages, abilities and levels of experience. More than a half marathon, The Vitality Big Half will bring together…
The Prudential Ride London 100 takes place on the 4th August 2019 and KD-UK has secured some of the highly sought after places for intrepid fundraisers. Taking a cue from…
UCL testimonial.
