We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreLatest news.
The Devon Austin Seven Club is organising a Grand Tour Of Wessex to take place on 16th & 17th June 2018. The aim of the tour is to give owners…
PRUDENTIAL RIDELONDON 100 How about riding the Prudential RideLondon 100 for KD-UK at on Sunday 29th July 2018? If you or someone you know is interested in taking part in…
We'd like to share a recent editorial from a local newspaper written by Cathie Siegal on behalf of the Martinstown Circle Suppers. Two years ago a group of us decided…
UCL testimonial.
