We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreLatest news.
Save The Date KD-UK is once again planning to join forces with the American based KDA to participate in their 2021 Conference. The conference is going virtual one more time.…
2020 KDA/KD-UK Conference We're delighted to announce that 'Moving Forward Together - 2020 KDA/KD-UK Conference' will be held from Wednesday, October 14, at 10:00am EDT to Thursday, October 15, 2020…
Please see below some general advice from Dr Fratta and Dr Rinaldi at UCL with regard to Kennedys Disease and the COVID 19 virus. 23 February 2020 This is…
UCL testimonial.
