Kennedy's Disease UK


News & Events

Who we are.

We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.

What is Kennedy’s Disease

Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.

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Kennedy’s Disease Clinic

Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.

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Fundraising for KD-UK

Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.

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Latest news.

UCL KD Research Newsletter July 18

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Hi and welcome to the inaugural research newsletter from the Kennedy’s Disease Clinic at UCLH! We always enjoy letting you know about exciting developments in KD research and care, and…

The Grand Tour of Wessex
16th & 17th June 2018

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The Devon Austin Seven Club is organising a Grand Tour Of Wessex to take place on 16th & 17th June 2018. The aim of the tour is to give owners…

Spaces available…Prudential Ride 100
29th July 2018
Entries must be in by 25th May 2018

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PRUDENTIAL RIDELONDON 100 How about riding the Prudential RideLondon 100 for KD-UK at on Sunday 29th July 2018?  If you or someone you know is interested in taking part in…

UCL testimonial.

I can’t thank Kennedy’s Disease UK enough. There is currently no cure or treatment for this rare disease, and patients are struggling without the care and support they need. KD-UK’s tireless work to raise funds for UCL’s research into our understanding of this disease and the development of potential treatments, and their efforts to raise awareness of the disease and help others to access critical information, is invaluable. With KD-UK’s help, UCL research is making important progress and we are incredibly grateful for their support.

Professor Linda Greensmith, Research Lead at UCL

Our supporters.