We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreLatest news.
My name is Izzy. I am twelve years old and my dad is a sufferer of Kennedys Disease. Kennedys Disease is a rare motor-neuron disease that effects men and is...
The Napoleon Inn, Boscastle organised a pub quiz night to raise awareness of Kennedy’s Disease and also to raise funds for much needed research into this rare disease. Many thanks...
We are delighted that the first ever Kennedy’s Disease Patient day is being held in the UK. This is a landmark occasion and we need as many families as possible…
UCL testimonial.
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