News & Events

07/08/2018

4

UCL KD Research Newsletter July 18

By Kate | News

Hi and welcome to the inaugural research newsletter from the Kennedy’s Disease Clinic at UCLH! We always enjoy letting you know about exciting developments in KD research and care, and...

27/02/2018

1

The Grand Tour of Wessex
16th & 17th June 2018

By Kate | Events, Fundraising, News

The Devon Austin Seven Club is organising a Grand Tour Of Wessex to take place on 16th & 17th June 2018. The aim of the tour is to give owners...

27/02/2018

4

Spaces available…Prudential Ride 100
29th July 2018
Entries must be in by 25th May 2018

By Kate | Events, Fundraising

PRUDENTIAL RIDELONDON 100 How about riding the Prudential RideLondon 100 for KD-UK at on Sunday 29th July 2018? If you or someone you know is interested in taking part in...

13/01/2018

2

Circle Suppers Update

By Kate | News

We'd like to share a recent editorial from a local newspaper written by Cathie Siegal on behalf of the Martinstown Circle Suppers. Two years ago a group of us decided...

21/11/2017

1

Kennedy’s Disease Patient Day
March 2017

By Rob Jones | News

We are delighted that the first ever Kennedy's Disease Patient day was held in the UK in March 2017. This was a landmark occasion where we met many families who...

15/08/2017

0

The Martinstown Barn Dance!
Friday 1st September 2017

By Kate | Events, Fundraising, News

The Martinstown Barn Dance. Friday 1st September, 7-11pm at Ashton Farm Barn. It’s time to kick up yer heels at the Martinstown Barn Dance! The hugely popular and talented Black...

15/08/2017

1

Padstow Moonlight Stroll and Sing 2017
15th August 2017

By Kate | Events, News

Boscastle Boys on the bandstand at 1930! Easy walk along the Camel trail. The walk finishes at the ship hotel...entry £5. Contact Sarah on 07980 327939

28/03/2017

8

Should I tell my kids? A child’s view.

By Kate | News, Stories

My name is Izzy. I am twelve years old and my dad is a sufferer of Kennedys Disease. Kennedys Disease is a rare motor-neuron disease that effects men and is...

16/03/2017

1

Pub Quiz Night Raises Awareness and Funds…

By Kate | Fundraising, News

The Napoleon Inn, Boscastle organised a pub quiz night to raise awareness of Kennedy’s Disease and also to raise funds for much needed research into this rare disease. Many thanks...

22/12/2016

2

Windsor Half Marathon 21st May 2017

By Kate | Events, Fundraising

Looking for a challenge in 2017? How about running for KD-UK at the Royal Windsor Half Marathon Trail Run on Sunday 21st May 2017? We think it’s up there as...

News & Events

UCL KD Research Newsletter July 18

The Grand Tour of Wessex
16th & 17th June 2018

Spaces available…Prudential Ride 100
29th July 2018
Entries must be in by 25th May 2018

Circle Suppers Update

Kennedy’s Disease Patient Day
March 2017

The Martinstown Barn Dance!
Friday 1st September 2017

Padstow Moonlight Stroll and Sing 2017
15th August 2017

Should I tell my kids? A child’s view.

Pub Quiz Night Raises Awareness and Funds…

Windsor Half Marathon 21st May 2017

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