We are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. We realise that more is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
What is Kennedy’s Disease
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.
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Kennedy’s Disease Clinic
Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London.
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Fundraising for KD-UK
Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease and there are many creative ways in which you can help us.
Find out moreThe challenges of living with Kennedy’s Disease
Latest news
The NIDO-361 clinical drug trial into a treatment for Kennedy Disease is now underway. NIDO-361 is a gene modification drug and it is at the cutting edge of new research…
Many thanks to Anita Symons-Edwards and the team behind the Boscastle Shanty Festival for the exceptional £4,500 donated to KD-UK this week. The money is being ring fenced, along with…
We are delighted to be able to share with you the slides taken from the London International Conference 2023 - please see below.
UCL testimonial
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