News & Events

This is the excellent article written by Katy Styles and published in The Guardian newspaper highlighting the struggles sufferers and their carers endure at the hands of this disease. Please...

On 21st May 2016 Sarah Hawkins organised a fund raising event, The Moonlight Lantern Walk. The walk started in Padstow and finished in Hawker’s Cover which is a distance of...

Kennedy’s Disease UK (KD-UK) is a local charity making a big difference. It recently awarded an £80,000 research grant to University College London which hosts one of the leading research...

Over the August Bank Holiday weekend Finn Wood (12 years old) joined his Dad to cycle the 2014 Tour de France route from Leeds to Harrogate; some 127 miles over...

Kate and Karen, KD-UK trustees,  attended the Rare Disease Day presentation at the Houses of Parliament, managing to speak to Ben Howlett MP, chair of the All Party Parliamentary Group,...

Karen Woollam, Kate Hopps and Ian Jones, trustees of Kennedy's Disease UK today awarded a research grant to the KD research team at UCL for £25000. This brings the total...