My name is Izzy. I am twelve years old and my dad is a sufferer of Kennedys Disease. Kennedys Disease is a rare motor-neuron disease that effects men and is...
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News
The Napoleon Inn, Boscastle organised a pub quiz night to raise awareness of Kennedy’s Disease and also to raise funds for much needed research into this rare disease. Many thanks...
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We are delighted that the first ever Kennedy’s Disease Patient day is being held in the UK. This is a landmark occasion and we need as many families as possible…
This is the excellent article written by Katy Styles and published in The Guardian newspaper highlighting the struggles sufferers and their carers endure at the hands of this disease. Please...
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On 21st May 2016 Sarah Hawkins organised a fund raising event, The Moonlight Lantern Walk. The walk started in Padstow and finished in Hawker’s Cover which is a distance of...
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Kennedy’s Disease UK (KD-UK) is a local charity making a big difference. It recently awarded an £80,000 research grant to University College London which hosts one of the leading research...
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Over the August Bank Holiday weekend Finn Wood (12 years old) joined his Dad to cycle the 2014 Tour de France route from Leeds to Harrogate; some 127 miles over...
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Kate and Karen, KD-UK trustees, attended the Rare Disease Day presentation at the Houses of Parliament, managing to speak to Ben Howlett MP, chair of the All Party Parliamentary Group,...
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Karen Woollam, Kate Hopps and Ian Jones, trustees of Kennedy's Disease UK today awarded a research grant to the KD research team at UCL for £25000. This brings the total...
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Kate and and our new Trustee, Karen, travelled up to UCL today to say hello to the team and to present a cheque for £15,000 towards their research. The team...
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