Hi and welcome to the inaugural research newsletter from the Kennedy’s Disease Clinic at UCLH! We always enjoy letting you know about exciting developments in KD research and care, and...
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The Devon Austin Seven Club is organising a Grand Tour Of Wessex to take place on 16th & 17th June 2018. The aim of the tour is to give owners...
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We'd like to share a recent editorial from a local newspaper written by Cathie Siegal on behalf of the Martinstown Circle Suppers. Two years ago a group of us decided...
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We are delighted that the first ever Kennedy's Disease Patient day was held in the UK in March 2017. This was a landmark occasion where we met many families who...
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The Martinstown Barn Dance. Friday 1st September, 7-11pm at Ashton Farm Barn. It’s time to kick up yer heels at the Martinstown Barn Dance! The hugely popular and talented Black...
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Boscastle Boys on the bandstand at 1930! Easy walk along the Camel trail. The walk finishes at the ship hotel...entry £5. Contact Sarah on 07980 327939
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My name is Izzy. I am twelve years old and my dad is a sufferer of Kennedys Disease. Kennedys Disease is a rare motor-neuron disease that effects men and is...
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The Napoleon Inn, Boscastle organised a pub quiz night to raise awareness of Kennedy’s Disease and also to raise funds for much needed research into this rare disease. Many thanks...
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This is the excellent article written by Katy Styles and published in The Guardian newspaper highlighting the struggles sufferers and their carers endure at the hands of this disease. Please...
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On 21st May 2016 Sarah Hawkins organised a fund raising event, The Moonlight Lantern Walk. The walk started in Padstow and finished in Hawker’s Cover which is a distance of...
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